Living with Cystic Fibrosis | Patient Centered Care and Trauma Informed Care for Pediatric Patients

Pediatric Medical Traumatic Stress

A cystic fibrosis diagnosis forces a family into a completely new way of life, filled with many difficulties and challenges. Countless pills, time consuming inhaled medications, and the ever present possiblity of a lung infection alter every aspect of a child's life. For parents with a newly diagnosed child, learning to cope with knowledge their child will not experience the typical "normal" childhood can be especially taxing. Listen to several young adults and parents share their stories of living with cystic fibrosis in the New York Times feature, "Patient Voices".

Pediatric Medical Traumatic Stress

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Intervention

Trauma-Informed Care

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